I live in Sri Lanka, a small island nation just south of India. My second son Irfan was diagnosed with DMD in 1988. For the past 23 years we have experienced all sorts of ups and downs that come with DMD. Now Irfan is 30 years old. He's been bedridden for the past 12 years and now uses a BiPap ventilator at night.
He is confined to his bed and was using a PC for his communication with the outside world. As he is unable to use a normal keyboard due to restricted movement of his fingers, he typed by clicking with a mouse on the on-screen keyboard. Now he uses a laptop and he has been able to use his left hand fingers to type on laptop keyboard while using the on-screen keyboard to press keys that he cannot reach with his fingers.
Luckily for us, he always maintains a very pleasant and jovial mood and never complains about his disabilities and sufferings. He says his religious belief has given him the courage and wisdom to face the reality and to defy the odds in life..
He has his own e-mail: irfanhfz@gmail.com, anyone can contact him by e-mail or through his mobile phone: +94 71 9081 478. He is fluent in English. He is one of the oldest people with DMD in this part of the world. Not single physician or clinician has seen him for the past 17 years. Would you believe?
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He is confined to his bed and was using a PC for his communication with the outside world. As he is unable to use a normal keyboard due to restricted movement of his fingers, he typed by clicking with a mouse on the on-screen keyboard. Now he uses a laptop and he has been able to use his left hand fingers to type on laptop keyboard while using the on-screen keyboard to press keys that he cannot reach with his fingers.
Luckily for us, he always maintains a very pleasant and jovial mood and never complains about his disabilities and sufferings. He says his religious belief has given him the courage and wisdom to face the reality and to defy the odds in life..
He has his own e-mail: irfanhfz@gmail.com, anyone can contact him by e-mail or through his mobile phone: +94 71 9081 478. He is fluent in English. He is one of the oldest people with DMD in this part of the world. Not single physician or clinician has seen him for the past 17 years. Would you believe?
Back to Home Page